Discover the latest updates on living gluten-free with Ashley Stuart. Learn about the reality of being gluten-free and how it can affect your lifestyle.
Navigating Life Without Gluten: The Struggles and Successes of Being Gluten Free
Living with Idiopathic Intracranial Hypertension (IIH) can be a challenging and isolating experience, as discussed in this video. The creator shares their personal journey with dietary restrictions and the emotional toll it takes. Through their content, they aim to raise awareness about IIH, migraines, and living with chronic illness.
The video also touches on the importance of seeking medical advice from a doctor, rather than relying solely on online information. It serves as a reminder that this type of content is for educational and entertainment purposes, and should not substitute professional medical advice. By sharing their story, the creator hopes to connect with others who may be going through similar experiences.
Navigating the Gluten-Free Lifestyle: An Honest Update from Ashley Stuart
Hey everyone so I wanted to just pop on here and just talk a little bit about my appointment with my neurologist so I just had my yearly checkup like a couple hours ago it went so well it’s really really to the point now where it’s probably the best it’s ever going to be when it comes to my migraines and.
I being in remission I often feel like I wish that everything was as easy as how the I has been to get rid of especially the migraines but that being said I am just so thankful to be in this position I’m literally in living a dream.
When it comes to this part of my life compared to where I was like only a few years ago I never ever ever thought that I would even be able to hold down a job let alone the thought of going back to school and all of that is a huge huge deal so I wanted to actually come on.
Here and talk a lot a little bit about another part of my life that I don’t really spend a lot of time talking about because it’s been so long but I’ve got something on my mind that I wanted to talk a little bit about because it’s been a bit of an issue lately and that is how isolating being gluten-free is.
And the fact that it’s not just as simple as swapping out a piece of bread that’s label gluten-free on to be able to be accommodated and how big cross-contamination is in factoring in what you can enjoy and how it affects your social situations because everything seem to involve you there food or drinks that contain some type of.
Gluten I’ve actually wanted to maybe think about doing a video where maybe I cook a meal and just talk about every little place that can have cross-contamination in it and some of the things that people don’t think about I love the people who honestly try to like include you I have a lot of experience.
With you know just being completely left out and it’s hard on your mental health you do get used to it after a little bit and honestly depending on how much or how little cross-contamination you can get before you actually start to experience a problem it can be a better thing to just completely outright refuse to have anything when you’re not sure of.
Where everything’s been than to risk it and possibly have cross contamination cuz people don’t know what they’re doing I’ve thought about that though because it’s a little little things that people don’t think about where you’re like and they think you’re being ridiculous but it’s a big source of cross-contamination it’s not just as simple as finding the.
Ingredients cuz honestly like I find finding the ingredients are something that is gluten-free is actually pretty easy these days it’s gotten a lot easier than it was when at least I went was originally gluten-free but the prep on making something can involve a lot of places of cross contamination that people don’t think about just it’s part.
Of my life that people really don’t think about and I don’t unless somebody is trying to offer me food that I can’t have I don’t mention that I’m gluten-free and it’s not like there’s a giant sign on me that says gluten-free on it so you know if people don’t know it’s one thing what really grinds my gears though is when people do know and.
They don’t even make an effort to try to accommodate you I’ve had this mainly happen with family but there are times in other parts of my life where this happens too people around you will know that you’re glutenfree and it the thing is is I say it doesn’t bother me and it doesn’t bother me as.
Much as it used to but deep down there is that feeling of being left out and because so much of our social situations involve food and you know the socialization that occurs when you have a meal with somebody else it is a big deal it’s a big thing it’s the glutenfree part really gets on on my nerves when I’m.
Traveling and I get the most frustrated during that but honestly the times when it hurts and feels the most isolating is when you are invited to an event people know that you’re gluten-free and you’re not accommodated in any way whatsoever and like I said there is a little bit of I guess asteris here that you.
Know maybe it’s better to not be included so that you’re not risking the cross-contamination but you know often people forget how much it’s the consideration that counts the most as I dig it deeper into this Shadow work and all of that you start to dig into things that.
You know you don’t think a really big deal but then you realize you know what that thing actually is kind of bothering me to a certain degree I’ve been this way for 12 years now be almost it’ll be 12 years in July and not quite as long with the full really really deep stuff but I cuz.
My my reaction’s gotten stronger over the years actually the longer I am not eating this stuff the more likely it is that I have a reaction when something does happen to contaminate or all of that which is usually where it’s coming from so it’s never really usually a really severe reaction but I know when it happens and.
So it’s just something I wanted to talk about because I don’t think people realize exactly how isolating it is like I talk about isolation with chronic illness and with you know not being included with your friends when you have migraines because of how many times you can’t do something but this is a like almost a hidden dis or it’s not really.
Hidden if people know but it’s a disability almost to a certain degree and it’s like you’re not being accommodated for that even if you don’t have a medical diagnosis of celiac disease which I don’t actually I did this myself I found out myself uh that’s about the only thing I would change actually going back it.
Would be nice to be able to have that diagnosis if that’s what’s actually happened which is possible I have psoriasis which which is an autoimmune condition and they often do come in more than one so it’s quite possible that Celiac is a thing it’s just I’ve never been tested so and to go through the testing now would be meaningless because.
It would be a lot of pain for a while in order for me to find out and then to go through all of that and find out no you’re not Celiac but you know this was helping you feel better so like it it doesn’t really the harms out way the positives basically although like I said it would be nice because claim some expenses on taxes and have that.
Basically medical necessity that you actually do have to do this I think being able to say Celiac would be a little bit more I think maybe helpful for when talking with people about it but honestly unless there’s food involved I don’t even ever mention it so like if somebody doesn’t know and they try to offer me something.
They often feel terrible and what I’m saying is don’t feel terrible about it you didn’t know but but if I have told you multiple times I don’t expect someone to remember after even a couple of times but if I’ve continuously said or you’re continuously around me and I’ve said I can’t eat that I’m gluten-free and you still continue to.
Offer me stuff that’s the point when I start to get a little bit frustrated cuz I know you’re not paying attention and it’s just something I wanted to talk about it’s just something that’s been on my mind and all of that because I am very very sad sometimes about all of the restrictions that I have to put up with it’s unfortunate it’s a big.
Part of being social as the food and all of that and as little of it as I like being an introvert you still want to be included in things and it’s a bonus to be included even just the thought of well sorry Ashley we couldn’t find anything for you that was gluten-free this time that’s fine but don’t start using that as a consistent excuse either.
How would you feel if you know you had something and couldn’t participate because of something that you can’t control basically and this is really something that you cannot control like there’s no cure for it it’s just you can kind of live a little bit more comfortably andless off the toilet if you are e glutenfree like I said I don’t.
Really expect accommodations very few people are accommodating to something like this however if you want to get a gold star in my books being accommodative or accommodating to the best of your ability is a really really decent effort but if you guys want to hear more.
About what it’s like being glutenfree even I feel like I should do more videos on this because it’s a really big part of my life that I don’t really discuss and you know I talk about I and migraines a lot but yeah anyways thanks for watching feel free to subscribe like the video bye everyone.
